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Jenn Hayes's avatar

This is very well written-thank you. As an RN who has worked as a research coordinator for NIH studies in another rare disease state-patients with Idiopathic Pulmonary Fibrosis you are correct in that the private sector is often not interested in funding trials for rare diseases as the return on investment is not there. The NIH grants are instrumental.

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Adam Marc (he/him)'s avatar

Thanks so much for caring for patients!! Between you and me, the nurse is the most important member of the care team!

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Sandra Spann's avatar

Thank you for this important information. Can we send letters to register our request? To whom?

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Damien Doyle's avatar

Exceptional piece - I always look forward to your blogs and now, chapters! Please keep up the awesome work you do!

From one GBM patient to another, I wholeheartedly thank you

Damien

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