Oh that is so hard. I am a partner to a loved one with a grade 4 brain tumor. As we get closer to the next scan, I can feel the scan-ziety. The heavyness of the wait, the hope of a good scan, and the reality the worst will be here at some point (or so I am told). When I read your writing, I find myself nodding my head and thinking: Yes. Same here. Exactly.
Anyway, thank you for sharing and helping others feel less alone.
My late husband was diagnosed with GBM June 2016. I’ve been following your writing almost from the beginning and have always been pulling for you. I love knowing someone has stolen back so many years from this greedy monster and is using them in amazing ways! Thank you for sharing your “Robin Hood of time” life with us! Please know there are many you’ve touched without ever knowing 💜
Mindi , you wrote exactly what I also feel, I lost my Mom in 2007 GBM. Brian is my hero and he is fighting for all of us today. Thank u for sharing this.
I’m sorry you and Whitney have this. My long-time partner, Bernard, fell and has a severe traumatic brain injury (last Monday). He is able to talk and make sense. Our whole lives are shattered, and there are financial issues on top of his injury. I’m writing because your paragraph about the body going forward is one that I’m feeling for myself, and are words I will use every day now. Thank you so much for your writing. I know you’re helping countless people. And I hope your doctor’s more optimistic assessment is the real one. 💙
Ugh - very true that scanxiety is real. The emotions in your writing hit me in the gut. Thank you for sharing and being so honest. Sending positive thoughts to both of you.
Oh man, what a read. So much gold in here. So blessed that I found you and your writings. Good luck tomorrow 🙏❤️.
Thank you, my friend.
Oh that is so hard. I am a partner to a loved one with a grade 4 brain tumor. As we get closer to the next scan, I can feel the scan-ziety. The heavyness of the wait, the hope of a good scan, and the reality the worst will be here at some point (or so I am told). When I read your writing, I find myself nodding my head and thinking: Yes. Same here. Exactly.
Anyway, thank you for sharing and helping others feel less alone.
This is very kind to say! Yes, we are not alone! My very best to you and your loved one.
Adam, I’ll be thinking of you. You and Whitney have got this.
Thank you. ☺️
My late husband was diagnosed with GBM June 2016. I’ve been following your writing almost from the beginning and have always been pulling for you. I love knowing someone has stolen back so many years from this greedy monster and is using them in amazing ways! Thank you for sharing your “Robin Hood of time” life with us! Please know there are many you’ve touched without ever knowing 💜
Mindi , you wrote exactly what I also feel, I lost my Mom in 2007 GBM. Brian is my hero and he is fighting for all of us today. Thank u for sharing this.
I’m sorry you and Whitney have this. My long-time partner, Bernard, fell and has a severe traumatic brain injury (last Monday). He is able to talk and make sense. Our whole lives are shattered, and there are financial issues on top of his injury. I’m writing because your paragraph about the body going forward is one that I’m feeling for myself, and are words I will use every day now. Thank you so much for your writing. I know you’re helping countless people. And I hope your doctor’s more optimistic assessment is the real one. 💙
Your in our thoughts and prayers Brian/ family 🫶🏽💪🏽
Your not alone🙏🏽❤️
Adam, you present it from your and Whitney's point of view. It's so powerful to be read these thoughts. Thank you. I really appreciate your writings.
"Ah, shit" is right, Adam.
Ugh - very true that scanxiety is real. The emotions in your writing hit me in the gut. Thank you for sharing and being so honest. Sending positive thoughts to both of you.